This video is so hard to watch. It’s hard to share. But some days it almost feels like he wasn’t here. As life moves forward and everyone grows older there is a weird kind of emptiness that just can’t be explained. But he was here. So I share this during Congenital Heart Defect Awareness Week. My CHD warrior who was so proud to stand up there next to me as I told a little bit of his story. He was very much here.
Yes, even though some days everything about him feels so distant…he was really here.